A hand holding the book The Body Keeps the Score on a train. Georgina is sitting in the background listening to music smiling at the camera.

Functional Neurological Disorder: The Common Neurological Condition You’ve Never Heard Of

If Functional Neurological Disorder is so common then why have I never heard of it? You may not have heard of FND, but Functional Neurological Disorder goes by many names, including: Functional Movement Disorder (FMD)Non-Epileptic Attack Disorder (NEAD)Functional Neurological Symptoms (FNS)Functional Neurological Symptom DisorderNon-Epileptic Seizures (NES)Psychogenic SeizuresPsychogenic Non-Epileptic Seizures (PNES)Dissociative SeizuresConversion Disorder Many of these …

Two photos of Georgina in her front garden wearing a dark blue tropical-themed bikini covered in neon body paint.

Painting My Pain [VIDEO]

I live with chronic pain caused mostly by Ehlers-Danlos Syndrome and its gastrointestinal issues. This kind of chronic pain is invisible so can be incredibly hard to explain how much it hurts, so I decided to paint it! I used UV body paint in neon colours and each section of colour represents a different pain. …

Georgina talking to the camera. You can only see her head and shoulders.

An Average Day with FND [VIDEO]

An average day with Functional Neurological Disorder doesn’t exist. Yes, there will be things you do most days, but in terms of symptoms, there is no such thing as an ‘average’ or a ‘normal’. It’s too unpredictable for that, so most days are spent just trying to cope with everything my illnesses throw at me. …

Georgina talking to the camera. You can only see her head and shoulders.

Treatments I’ve Had for FND [VIDEO]

FND treatments are largely lacking. Treatment is often centred around symptom management, but not every patient finds treatment helpful. Patients are usually offered: Cognitive Behavioural Therapy (CBT)PhysiotherapyOccupational Therapy These can be offered individually or as a combination. You’ll find out about the treatment I’ve had in the video below, which I made for FND Awareness …

Georgina talking to the camera. You can only see her head and shoulders.

Tests I’ve Had for FND [VIDEO]

For most people FND is a diagnosis of elimination. Every other possibility is ruled out and then they’re diagnosed with FND. But there is a criteria for FND. There are tests for FND that can help confirm the diagnosis, which is really important in being able to treat the condition. You can find out more …

Georgina talking to the camera. You can only see her head and shoulders.

Most Difficult Aspect of FND [VIDEO]

What do you think the most difficult aspect of FND is? Or any chronic illness? For me it’s understanding and constantly having to explain it. Most people, including doctors, have never heard of FND. If they have, they don’t understand it. No one does. Many people think we can stop symptoms or prevent them from …

Georgina talking to the camera. You can only see her head and shoulders. She has her left hand on top of her head.

FND Misconceptions [VIDEO]

If you’ve heard of FND before, you’ll know that it’s highly misunderstood. There are lots of things people believe about FND that aren’t actually true. In my opinion, the top seven FND misconceptions of FND are: FND is fake.FND is rare.People with FND are putting it on.Everyone with FND has seizures.Everyone with FND has the …

Georgina talking to the camera. You can only see her head and shoulders.

Is FND Really an Invisible Disability? [VIDEO]

Is FND really an invisible disability? Well, the answer isn’t quite as simple as yes or no. It’s yes and no. Yes, you can’t see how a person is affected internally. You can’t see it on scans. But also no. You can see tremors, paralysis and seizures. You can see some of its symptoms. You …

Georgina talking to the camera. You can only see her head and shoulders.

My Worst Symptom of FND [VIDEO]

My worst symptom of FND is seizures. I can have literally hundreds of seizures a day. They can be triggered by anything from pain to fatigue to something as small as movement or noise. Below is the video I made for FND Awareness Month, but if videos aren’t your sort of thing, you can find …

Georgina talking to the camera. You can only see her head and shoulders. She has her left hand reaching for the camera.

How I Cope with FND [VIDEO]

I’m often asked “How do you cope?”. The truth is, mostly I don’t. When I try to cope with FND and my other conditions, it’s through music and raising awareness. I try to explain what FND is to people, especially medical professionals, in the hope that no one else has to go through what I …