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Painting My Pain [VIDEO]

I live with chronic pain caused mostly by Ehlers-Danlos Syndrome and its gastrointestinal issues. This kind of chronic pain is invisible so can be incredibly hard to explain how much it hurts, so I decided to paint it! I used UV body paint in neon colours and each section of colour represents a different pain. …

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An Average Day with FND [VIDEO]

An average day with Functional Neurological Disorder doesn’t exist. Yes, there will be things you do most days, but in terms of symptoms, there is no such thing as an ‘average’ or a ‘normal’. It’s too unpredictable for that, so most days are spent just trying to cope with everything my illnesses throw at me. …

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FND Misconceptions [VIDEO]

If you’ve heard of FND before, you’ll know that it’s highly misunderstood. There are lots of things people believe about FND that aren’t actually true. In my opinion, the top seven FND misconceptions of FND are: FND is fake. FND is rare. People with FND are putting it on. Everyone with FND has seizures. Everyone …

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How I Cope with FND [VIDEO]

I’m often asked “How do you cope?”. The truth is, mostly I don’t. When I try to cope with FND and my other conditions, it’s through music and raising awareness. I try to explain what FND is to people, especially medical professionals, in the hope that no one else has to go through what I …

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What Is FND? [VIDEO]

FND stands for Functional Neurological Disorder, which is a complicated and highly misunderstood neurological condition. FND can present with many symptoms which are extremely varied, such as seizures, tremors, speech problems and paralysis. To find out more about FND check out the video below or my How I Explain Functional Neurological Disorder video. If videos …